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When Jayne’s daughter, Amy, was diagnosed with a rare DNA repair disorder, she faced more questions than answers.

Instead of accepting the unknown, Jayne took action, founding ‘Amy and Friends,’ a lifeline for families navigating the same uncharted territory.

This is the story of how one mother’s determination built a global community

Inspired by this story? Make a Difference Awards entries are open for 2025. Find out more on bbc.co.uk/makeadifference