βI know what madness is, and this is the good kindβ
The Access All team head to Scotland for their first live show!
The Edinburgh Festival Fringe is in full swing as Nikki Fox joins Emma Tracey in Scotland to put on a show at Dynamic Earth in front of a live festival audience!
Comedian Joe Wells reveals how he decided to become King of the Autistics and the unusual way he discovered he was autistic in the first place.
Mental health advocate, comedian and writer Juliette Burton confesses that while the rest of the UK βgot into Wordle and banana breadβ during lockdown, she got into neuroscience as she tried to figure out how her brain works.
And Australian actor Sam Brewer has been wowing crowds with his play described by some as a βwoke farceβ which changes peoplesβ perceptions through the power of comedy. The problem is, the play has a name that simply cannot be said on a ³ΙΘΛΏμΚΦ podcastβ¦
Recorded by, and with huge thanks to the ³ΙΘΛΏμΚΦ Edinburgh Festivals team. Mixed by Dave OβNeill
Produced by Beth Rose, Keiligh Baker and Emma Tracey
The editor is Damon Rose
Email: accessall@bbc.co.uk and Google us for the latest transcripts. Find us on ³ΙΘΛΏμΚΦ Sounds, smart speakers and Five Live early on Monday mornings.
Transcript
Μύ
21st August 2023
bbc.co.uk/accessall
Access All β episode 67
Presented by Nikki Fox and Emma Tracey
Μύ
Μύ
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ We are in Dynamic Earth, which is quite a popular tourist attraction in Edinburgh.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Itβs very beautiful.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And ³ΙΘΛΏμΚΦ at the Edinburgh Festivalβs venue is here. And we are going into that venue, onto the stage to talk to people.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yes. And may I say, Emma, your hair looks divine.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Oh thank you. What about you?
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I always look a little bit overdone, do you know what I mean?
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, does that mean are you usually better dressed than me?
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ No, no, I just usually overdress, too much make-up and that kind of stuff.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I did see your make-up box last night. You even let me touch it.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, itβs huge. And Iβve got a nice little outfit on, itβs like a champagne coloured dress and a little blazer.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Lovely.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ For the professionalism.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I am very, very excited. Weβve just met all the guests.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, theyβre lovely, arenβt they?
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah. weβve got Sam, weβve got Juliette and weβve got Joe. And weβve introduced ourselves, had some silly jokes with them.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I think as I just left the green room to come and find you I heard Juliette say, βDoes anyone in here mind boobs? Anyone mind seeing boobs?β [Emma laughs] because she was getting changed. Brilliant.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I thought there was a screened off area we could have sent her to.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ She doesnβt mind.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ No, sheβs right.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Boobs are boobs.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Sheβs right, absolutely, absolutely.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Shall we do this, Ems?
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Letβs go.
PRESENTER-Μύ Please welcome to the stage Nikki Fox and Emma Tracey.
MUSIC-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Theme music. [Applause and cheers]
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Hello everyone. This is our very first live Access All for the ³ΙΘΛΏμΚΦ. Itβs the disability and mental health podcast. This knackered old disabled bird on the mobility scooter with far too make-up is me, Nikki Fox.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And Iβm Emma Tracey, and we are live in front of our audience at ³ΙΘΛΏμΚΦ at the Edinburgh Festival. And we have some fantastic guests for you tonight.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah. But first a quick poll, lovely audience, I hope you donβt mind me asking this but I am very nosey:
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ She is.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Is anyone disabled in the audience?
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Hands up.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Ah, hands up, hands up.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ But actually hands up doesnβt quite meet with my access needs, Nikki [laughter]. We canβt do hands up.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Iβd forgotten about that.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yes, I think that people if youβre disabled you should hum like this [hums]. So, go on, give us a hum.
AUDIENCE-ΜύΜύΜύ [Hums].
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ See now, I was not sold on this idea, but that was actually quite nice.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Can we get a non-disabled hum to see if it sounds different to a disabled hum? Go on then.
AUDIENCE-ΜύΜύΜύ [Louder humming].
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Ooh, now that is different [laughter].
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thatβs deeper and ooh.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Ooh, thatβs very serious. Thatβs a serious hum [laughter].
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I think, Iβm going to be honest, the disabled hum was a lot better [laughter].
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ It was a lot more tuneful.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Right, letβs get on with it. Itβs a goodie.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Okay, get your applause going [applause and cheers] weβre going to introduce the guests. First, comedian Joe Wells.Μύ Μύ
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And we have actor, Sam Brewer [applause and cheers].
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And comedian Juliette Burton [applause and cheers].
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Honestly, weβve been saying this backstage, but you all look phenomenal. Youβve all got your individual style. I so want those puffy sleeves, Juliette.
JULIETTE-ΜύΜύΜύΜύΜύ Thanks. One of the production team said that Iβm channelling Little Mermaid vibes. I wasnβt aware of it until it was pointed out, and now I feel very seen.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Good.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Some say sheβs disabled, you know. Just saying.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ What, the Little Mermaid? Oh, we had this discussion, didnβt we?
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ See, I bring everything round to disability; thatβs the other thing I do.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I wasnβt buying it. Literally everything. And I was very taken by Joe Wellsβ cardigan.
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Itβs lovely, isnβt it?
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Oh, a cardigan.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I love it.
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ This is great for an audio podcast, isnβt it? [laughter]
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Is it like one of those bobbly ones?
JULIETTE-ΜύΜύΜύΜύΜύ Itβs very tactile.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Is it? Can I feel it? No, I wonβt, if youβre not comfortable thatβs fine.
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ You can feel my cardigan [laughter].
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Can I feel your cardigan?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ It now feels weird.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Can I touch it, Joe?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ You can touch my cardigan, yeah.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Oh, itβs lovely and soft. And itβs got pockets as well, hasnβt it?
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ No one ever wants to touch me!
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Oh, love it. Itβs gorgeous. That is soothing.
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ It takes days to dry when you wash it.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Oh, I bet it does. And I bet you have to put it on a special wash as well, do you?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I handwash it.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Ah!
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Iβm going to start off, most important question really, whoβs got the best show?
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Why donβt we start with Sam? Ten seconds, have you got the best show?
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Well, look, thereβs a lot of shows, and I really believe that everybody brings their own spirit to any kind of festival.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Time up, sorry.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Juliette, have you got the best show?
JULIETTE-ΜύΜύΜύΜύΜύ I couldnβt possibly comment. Iβve never actually watched my show and Iβve not seen these guys yet.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Youβre so kind.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So good. Joe?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Well, art is subjective, but I do have the best show, yes.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Amazing. We always had to have one cocky one, didnβt we? [laughter] I love that. Now, Joe, youβre here with your latest standup show, Kind of the Autistics. Itβs an amazing name. And youβre at the Banshee Labyrinth, arenβt you?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ The title really makes me laugh, and I came up with it [laughter].
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Itβs so good.
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I thought someone would stop me calling it King of the Autistics because itβs such an arrogant title, but my agent went, βOh yeah, letβs do thatβ. And now itβs called King of the Autistics, yeah.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I love it. Now, youβre a standup, you are a writer, a speaker and a podcaster. And when I was reading about you, because I have been stalking you all, my notes said, Joe is autistic and his routine about his non-autistic brother went viral in 2022, racking up a staggering 4.5 million views on social media platforms. And then it said, according to Joe [laughter]. So, Iβm wondering how many views did you actually get then, Joe?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Well, yeah, 4.5 million. But a lot of the people who follow me online are other autistic people, so 4.5 million views could just be four of us that really liked it [laughter].
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And Iβm going to put this to you as well, Joe Wells, that you do not have a non-autistic brother, do you, hunk?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ This is like some sort of sting operation.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, I know. Itβs not a nice easy-breezy interview this, Joe Wells. No, no, no.
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ No. Iβve got a non-autistic sister. But I wanted comedy to challenge stereotypes, and I wanted to challenge the stereotype that itβs only women who can be not autistic. There are lots of non-autistic men, but it often goes undiagnosed in men. So, thatβs why I made it a brother rather than a sister.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And youβre right, a lot of the people who are diagnosed autistic have been men over the years, so thatβs what youβre getting at, isnβt it?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yes.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ How has your Edinburgh Festival been so far?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Itβs been good. Iβm happy to be here. But Iβm not doing loads of extra shows. Iβm just trying to look after myself a bit.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thatβs nice.
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, my flat is disgusting [laughter]. Thereβs something libelous written, graffitied on outside. I was about to say whatβs graffitied outside my flat but I donβt think I can make that accusation on the ³ΙΘΛΏμΚΦ. And my bathroom light the switch isnβt in my bathroom, the switch is in next doorβs bathroom, so I can only go to the toilet when next door are going to the toilet [laughter].
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Amazing.
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, thatβs stressful. But otherwise Iβm having a lovely Fringe.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Can you not go to the toilet in the dark? Itβs pretty easy actually [laughter and applause].
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Youβre amazing, Emma. You could teach him.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I can teachβ¦well. Thatβs way above my pay grade, sorry.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Shall we do that? So, you were saying there then Joe that youβre looking after yourself. You mean just like mentally and physically not overdoing it, yeah?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah. I mean, Iβm mainly eating takeaway food and beer. But in other years I have taken less care of myself, so comparatively Iβm doing all right.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Juliette, youβve been taking care of yourself as well, havenβt you, at the Fringe?
JULIETTE-ΜύΜύΜύΜύΜύ Iβve been trying, which doesnβt mean succeeding, but I have been trying to do that in new ways.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ It must be so hard here though because one, itβs such an amazing city and itβs so vibrant and itβs so busy, and this job that you have is full on, isnβt it? And itβs a big deal and itβs chaotic I would imagine.
JULIETTE-ΜύΜύΜύΜύΜύ It is mad, but Iβve been sectioned under the Mental Health Act so I know what madness is.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I love that!
JULIETTE-ΜύΜύΜύΜύΜύ And this is the good kind. This is the place where madness can breed creativity, creativity can breed madness. And having been diagnosed with 15 different mental health conditions and been in therapy for over 20 years and hospitalised five times this Fringe is amazing. This is like the good stuff.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Easy-breezy.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I really like that sheβs giving her disability credentials there.
JULIETTE-ΜύΜύΜύΜύΜύ I just want to name that out there.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Put it on the table, I love it. Youβre my kind of girl.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Weβre going to hear more about that later as well. But Joe, I was going to say, going back to you, how would you describe your comedy to people who havenβt seen you?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Oh, I donβt know. Sometimes itβs shouty. I find if you shout the jokes louder theyβre funnier. And I guess Iβm quite interested in different perspectives on neurodivergent, so a lot of what I do comes from sort of trying to flip scripts on things. So, you know, doing stuff about my brother being heβs very severely not autistic [laughter] and talking about things from a different angle. I think the writer Donna Williams is a very important writer to me. I think that everyone should read Donna Williams. And a lot of her stuff was all about that, was about seeing autistic people from another angle, and the way in which our ideas of autisticness have only come from one perspective, and trying to offer different perspectives on that. So, I basically just, yeah, have done what Donna Williams did but try to put jokes on it.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Your previous shows have been a lot about politics and the state of the world etc etc. This one, as you said, is called King of the Autistics. Tell me about it and what inspired it.
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Well, Iβve been doing stuff about being autistic for a few years now. And my angle is I think autistic people should have rights, and I believe in the neurodiversity paradigm, so I believe that itβs good that weβve got different brains and that that makes the world a better place. And I think autistic people should be treated fairly. And whenever you speak up about those things people will say, βWell yeah, but you donβt speak for all autistic people. Youβre just one person so we donβt really need to listen to you because you donβt speak for all autistic peopleβ. So, I decided that I was king of the autistics [laughter] so that if someone says to me, βYou donβt speak for all autistic peopleβ, I can go, βWell actually I am their king, I speak for all of themβ.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, you just made yourself king?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, thatβs how it works: you just declare yourself.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ How do the other autistic people feel about that?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Youβll find in the show itβs very complicated. Iβve stood down as king because the pressures were too much [laughter]. We had an election and thereβs a new king; but you have to come to the show to find out who that is.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And you got your formal diagnosis as autistic in 2019. What have you learned about yourself since that? And how has that changed how you do things, how you do your comedy etc?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Itβs complicated. What happened was in 2018 my mum gave me a lift, I went for lunch and she gave me a lift home, and as I was getting out of the car she said to me, βOh, by the way, have I ever told you that youβre autistic?β [laughter]
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ [Singing] have I ever told you youβre autistic?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I said, βNo, youβve never told me that beforeβ. And she said, βWell, why did you think that I used to run that support group for parents of autistic children?β [laughter] and I was like, βOh yeah, you did do that, didnβt you, mum?β I wasnβt really paying attention to what she was doing; I was just sort of in my own world really. And yeah, so Iβd had this informal diagnosis of what they would have at the time called Aspergerβs traits or something like that. And then it had been referred to euphemistically a lot growing up, but I didnβt pick up on those euphemisms. And then as an adult I had a formal diagnosis.
ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Iβve gone off the track. That wasnβt the question at all, was it? Sorry.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah. So, how did that change what you do? So, you used to do comedy about other stuff, now you do comedy about being autistic. So, I suppose one example is youβve talked about drinking beer, youβve not always drank alcohol, have you?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, I like to get drunk now. Thatβs what I do at the Edinburgh Fringe! I used to not get drunk because I used to get drunk and then I wouldnβt make eye contact with people and Iβd move my hands about and Iβd say the wrong thing, and I was very ashamed of who I was. So, I didnβt drink alcohol when I was a teenager. And now Iβm older and I have this diagnosis, Iβm proud of who I am, and Iβm trying to get hammered at every opportunity [laughter].
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Love this. A lot of your material does focus on other stuff that makes you angry though, doesnβt it, Joey? Like your dislike of menβs voices I was reading here in the notes, and your own accent. I think youβve got a lovely voice.
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ My own accent? I donβt mind my own accent. I always get nervous doing gigs in Scotland because of my accent because Iβve got the accent that Scottish comedians put on when they want to make fun of English people [laughter]. Iβm always self-conscious that Scottish audiences think that Iβm like a local guy doing a caricature act. It just wears me down lots of sorts of voices over the top, particularly menβs voices because they are generally sort of lower and more resonating, and it just wears me out. Thatβs something I have to be conscious of here at the Fringe is I felt awful the other day, and I just went home and was in aβ¦I thought I needed a nap, but I didnβt, I just sat quietly in my room for an hour and it just helped me to sort of reset. There are lots of voices all the time here and that is tiring.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, it is hectic. You had a rant against e-scooters I was reading as well. What would you put into Room 101? Iβd put acrylic nails if that helps.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Tinned fish for me.
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Youβd put what in?
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Long, long acrylic nails.
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Why do you not like long acrylic nails?
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I donβt know, itβs just something about them, like on me. I love the on other people, but when I had them on me I just couldnβt do anything. And Iβm disabled enough. Itβs like they disabled me further.
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Right [laughs].
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Do you know what I mean?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah. But you should see the social model of disability and the world is set up against people with long acrylic nails thatβs a social barrier.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ What would you put in, Sam?
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ What, about the social model or what I hate?
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Your Room 101, yeah, if you had to put something in?
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Room 101 is a room where you put the thing that you hate the most.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yes.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Heβs Australian, thatβs why Iβm telling him that.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ London [laughter].
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Oh youβre in Scotland, that went down well. Good one. You know your audience. Read the room.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Juliette, what would you put in there?
JULIETTE-ΜύΜύΜύΜύΜύ Oh god. I wouldnβt put God in there [laughter]. Sorry. I have a whole list of things that make me angry in my show, and so Iβm trying to pick which one. I will choose waiters who say, βIs it just you?β when you work into a restaurant on your own [laughter and applause]. Rude. What do you mean, itβs just me? It is all of me. And if Iβm asking for a table for one Iβm asking for a table for The One, thank you very much. Just me can just go elsewhere and justifiably spend my money there. Just saying.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Brilliant. Joe, stay there. Thank you.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thank you Joe.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Weβre going to stick with Juliette now, arenβt we?
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yes, because Juliette Burton is here in Edinburgh with her show No Brainer. And itβs at the Gilded Balloon, is it [mispronounces] Teviot?
JULIETTE-ΜύΜύΜύΜύΜύ Teviot.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Got it wrong, I always do. Teviot Venue. And itβs a solo comedy show, and youβve been packing out shows since 2015, havenβt you? Μύ
JULIETTE-ΜύΜύΜύΜύΜύ Iβve sold out 2015, 2016, 2017, 2018 every show up in Edinburgh. Before that I was doing solo shows since 2013, double act since 2011. And before that I was in other peopleβs shows since 2006. And the first time I came to Edinburgh was as a reviewer in 2005, so I am proof that reviewers are just jealous [laughter].
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ The blurb says that No Brainer isnβt another awareness raising show about mental health, itβs actually a change-making show. Do you want to explain that to me and the audience as well?
JULIETTE-ΜύΜύΜύΜύΜύ Yes. So, my solo shows have always touched upon my mental health lived experience, which Iβve already alluded to. And in each of them I try to push the conversation forward a little bit more around mental health lived experience. So, it started off with just coming out as Iβve had mental health experiences and Iβve been hospitalised. I then started doing shows about body confidence, having been a UK size 4 and a UK size 20 due to anorexia and binge eating disorder and having all those experiences, being sectioned for anorexia. And then I did a show about kindness and how kindness can change the world. And in that I started speaking about my hallucinations that I had when I was sectioned under the Mental Health Act. So, each time I was trying to push and push and push just to expand our comfort levels of discussion around mental health and mental illness. And finding intersectionality as well with disability, with just anybody whoβs living life on the outskirts of what is the socially acceptable norm. And the Fringe is the right place to do that; weβre on the fringe of society, right? So, being able to have these conversations about whatβs deemed socially acceptable and unacceptable, whatβs deemed socially sane or insane, what is deemed funny or not funny β and many audiences have told me which [laughter]. And I think this is why the Fringe exists is to have those conversations.
ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ This show, however, having raised awareness for so long it is borne of yet another breakdown that I had during the past four years when I havenβt been up in Edinburgh. It wasnβt purely due to the fact that I wasnβt in Edinburgh [laughs]; there was a global something or other that happened as well. And I really struggled again. I was like, Iβve been in therapy for so long, how is this happening again? And I decided I needed to find out what the root of the problem were, how does my brain work, everyone else got into Wordle and banana bread, I got into neuroscience.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Wow.
JULIETTE-ΜύΜύΜύΜύΜύ And I found it fascinating. I was like thereβs some cool stuff in there that probably could help a lot of people. I also was doing some deep, deep therapy into the dark shadowy space in therapy, which Iβd been avoiding for all of the time. Because going to therapy turns out is not the same as actually doing therapy.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, what is the difference in that, then?
JULIETTE-ΜύΜύΜύΜύΜύ I used to go to therapy and perhaps participate in a fairly surface-level engagement of some parts of it. but there are certain things that I wasnβt ready to look at in my past, in my experience that I donβt bring to my shows because that is purely for therapy. Comedy isnβt therapy β apart from the fact that my therapist is on holiday for three weeks at the moment, during Edinburgh Fringe, how dare she! Anyway.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ What if you met her here?
JULIETTE-ΜύΜύΜύΜύΜύ [Laughs] she came to my show in 2019. I think that nowadays weβve done the awareness raising and nothing really changed, either systemically in funding of services or in terms of governmentally policy, or on an individual basis. For me I was still struggling with my mental wellness, so I decided that I needed to personally change and also highlight the lack of systemic change. And a lot of that is crammed into this show, a lot more angrily. And so you can come along. Youβll laugh a lot. You might learn something, but mainly youβll be laughing. And that might give you some more tools to help you personally change your own experience of your mental wellness. And it will also make you potentially a little bit angry at the lack of funding that certain governments are not giving the services that are so vitally needed, particularly post the global thing that happened that Iβm trying to forget, but I keep talking about.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Oh I know, itβs just unavoidable, isnβt it? You said itβs a change making show, you explained what that is. What are the tools that we need to rebuild a healthy brain?
JULIETTE-ΜύΜύΜύΜύΜύ Ooh, this is a big question.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Youβve got 30 seconds. Go! [laughter]
JULIETTE-ΜύΜύΜύΜύΜύ I would say that my brain did break in as much as colloquially speaking during these last four years I lost all of my tools that I was relying on: my social network, my therapy, my therapeutic relationship, my performing, my income, everything that I thought was certain in life was ripped away. And when that happens understandably the best of us, who perhaps didnβt have any problems before that sort of thing happened, might struggle. For me it wasnβt an immediate thing, but it took some time and then suddenly in 2021 I just became catatonic. I couldnβt leave the house, I didnβt understand what I was going through. I cancelled all of my shows that weβd scraped back because I could not get up on stage and perform.
I then started learning about the brain, and I think itβs important that we understand that we are an amazing mass of cells and programming in our lovely little noggins that theyβre just doing their best. Like my mental illnesses are not weaknesses; they are survival mechanisms that have helped me survive overwhelming thoughts and feelings. So, my brain, my polyvagal β Iβve learned a lot about polyvagal theory, which is how the brain connects to the rest of our bodies β and Iβve realised that for some of us our brains have formed slightly differently to others. For me itβs CPTSD, so complex post-traumatic stress disorder, which I see as the roots of the tree of all of my other 15 mental health conditions. I went into the shadowy dark place and for a long while I was buried, but now Iβm sprouting. And sometimes β to mix my analogies β youβve got to have a forest fire for any real growth to happen.
ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, having said all of that really worthy stuff I would say I am having so much fun, because coming back here, having been to that dark place, and performing every day on stage itβs just a flipping joy. We canβt swear. Itβs such a joy to be here, just being here with audiences laughing. Thatβs enough. Like all the sold out Laurels, five star reviews and awards, I can tell you that means nothing when youβre sitting at home along with no audiences there to share it with. Being on stage every single day is this beautiful experience of connection with audiences. And thatβs all Iβm after in life generally.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, laugh and learn about your brain.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah.
JULIETTE-ΜύΜύΜύΜύΜύ Yes, thatβs what I was trying to say in that very lengthy speech I just gave [laughter].
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Obviously because youβve got the whole mental health advocacy and youβve got your comedy as well, would you be the same person if you didnβt have that comedy? Is the comedy a real support? Is it a help? Would you be a completely different person without the comedy, dealing with what you have to deal with?
JULIETTE-ΜύΜύΜύΜύΜύ I mean, the honest answer is I donβt know. But I will say that the first time that I started to want to talk to my friends even about my more unusual mental health lived experiences, so my hallucinations, my experiences of suicidal ideation, being able to make them laugh about it eased the tension. It helped them a lot, and it helped break the tension, ease their anxiety. If weβre laughing together we feel less alone. And also itβs the quickest way to change somebodyβs mind is telling a joke. If youβre able to do the set-up punchline gag someone might start off that experience listening to you thinking they know where itβs going, but by the end of it theyβre laughing and theyβve changed their perspective. So, itβs the most succinct way of changing somebodyβs idea of you. And given that I look like the Little Mermaid [laughter] Iβm taking that and running with it.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Sam, thatβs your thing as well, isnβt it, changing peopleβs minds?
JULIETTE-ΜύΜύΜύΜύΜύ Looking like the Little Mermaid.Μύ
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I used to be ginger back in a past time. No, Iβm not trying to jump in here over you, but that changing peopleβs minds thing I think it works really effectively with comedy. Our theatre company, FlawBored, itβs made up of myself, Chloe and Aarion, but a big thing for us was trying to challenge these sort of, we call it like a woke farce, because weβre basically looking at liberal identity politics within corporate environments or artistic environments, and what thatβs meant for disabled people.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ He doesnβt use as big a words in the play though, just to say.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ No, itβs funnier than that [laughter]. Also Iβm just going to show my disability cards here: Iβm both blind and Australian.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Show off [laughter].
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, I was really confused coming in because I left my stick back in the green room and one of the stage managers said, walk forward. I was like walk where, thereβs all these people. And then thereβs a microphone in front of me and Iβm like argh, whatβs going on.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And the headphones as well.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, where is this!?
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Well, Juliette thank you so much for telling us all about your show, which sounds absolutely amazing. And I know, Iβve been to see it, itβs got dress-up and glitter, so when you tour again soon everyone should just go and see it.
JULIETTE-ΜύΜύΜύΜύΜύ Yeah, we will be on tour in September if anyone wants to come.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Iβm definitely coming.
JULIETTE-ΜύΜύΜύΜύΜύ That would be lovely.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Juliette, youβre a superstar, you really are. We have audience questions. That will be a really nice time.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Audience questions for any of us, not just Juliette.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Weβre going to keep going yet. Weβve got more interviewing to do, but if youβve got any questions that you would like to ask our guests:
GIDEON-ΜύΜύΜύΜύΜύΜύΜύΜύ Hi, Iβm Gideon. Iβve got cerebral palsy. Youβve all mentioned about sort of the relationship between disabled people and non-disabled people in your work. And I wondered if youβd have any advice for non-disabled people how they might want to talk to disabled people. That stuff people get nervous about being pc or saying the wrong things.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Joe?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Well, Iβm autistic so I say the wrong things to everyone [laughter]. Yeah, I think people are, and I think we just need to accept that in order for progress to happen things just have to be messy and people have to say the wrong things and be embarrassing. And actually things are tricky to talk about. We talk about conflicting inclusion needs; if someone needs a space where they can make noise, and someone else needs a space where theyβre quiet, itβs difficult for those two people to be in the same space. And inclusion is really difficult. I think progress is in ten yearsβ time weβll look back on everything that weβre doing and go, well that wasnβt very good. Thatβs how you progress.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Iβve got another question. Thank you so much for that, Joe. Thank you for asking that question as well.
MALE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Iβve got a question, I guess for Juliette, but other people feel free to chip in as well. You talked about the highs and the lows β and I canβt wait to go and see your show by the way β but I wonder from your perspective what needs to happen to enable people to better understand mental wellness and just to feel comfortable with it?
JULIETTE-ΜύΜύΜύΜύΜύ Can I pause for a second and get my stats out of my pocket? Would that be okay?
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Do it.
JULIETTE-ΜύΜύΜύΜύΜύ So, one in six young people now have a diagnosable mental health disorder. Thatβs five in every classroom. In May alone there were 3,732 urgent referrals to mental health services for under 18s. These are stats by the way from MQ Mental Health Research, an amazing charity. Patients have been hospitalised with β oh god, Iβm going to the c-word now β COVID, [laughter] patients who were hospitalised with [coughs] COVID were at much greater risk of developing neuropsychiatric problems than patients admitted for other reasons. And long-COVID β Iβm so sorry β is thought to affect 2 million Brits, 3.1% of the population, with symptoms including brain fog, fatigue and depression.
ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ What Iβm trying to say is we need funding. We need so much funding for education, intervention, prevention and research, because without research itβs just guesswork. And research is going to be the backbone of lobbying governmentβs change, changing services, changing diagnostic criteria. And that goes across the board with all disabilities as well.
ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Also coming to my show I think would really help [laughter and applause].
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Now listen, weβve got time for one more very quick question.
FEMALE-ΜύΜύΜύΜύΜύΜύΜύ Thanks Juliet. I loved that. And Iβm one of the 2 million people with long-COVID who it nearly disabled.
JULIETTE-ΜύΜύΜύΜύΜύ Welcome.
FEMALE-ΜύΜύΜύΜύΜύΜύΜύ Thank you. And I β sorry, Iβm going to say the c-word as well β but COVID could have given us an opportunity to really rethink health and healthcare and taking our health for granted. And I think the opportunity has been missed and weβve just gone backwards. The 2 million people who have had long-COVID for the last three plus years are quite surprised, disappointed and appalled at the ableism β to quote what you said earlier β and are up in arms and wanting to change the way people are treated. And I just wonder, listening to you all, I bet many people coming to your shows have some form of disability and are part of that community, and I just wonder how we can get through to people who are not disabled and who are currently thinking COVIDβs over, no one else is getting COVID anymore, no oneβs getting long-COVID β when we absolutely are. And there is this massive denial about the fact that anyone can go from being healthy to disabled when clearly thatβs not the case. I just wonder how we reach out to that audience, because it feels like people have got their fingers in their ears and going, la, la, la, it canβt happen to me.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Sam, weβre giving that one to you, because youβre giving out disability ally tattoos at the end of your show.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yes. Gimmicks, thatβs how you reach out to them [laughter].
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Itβs hard, itβs hard.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah. I think itβs a really tough one but itβs also again for us in our experience, and I can only talk from our experience as well, because I think a big goal for FlawBored was making sure we had a shared space of non-disabled and disabled people. And in the show itself we set it up at the very beginning, so non-disabled people watching it would be like, oh what is this woke trash, and then we rip the carpet out from underneath them. And that was a really big intention to sort of trap them.
JULIETTE-ΜύΜύΜύΜύΜύ We win them over, right? Whether thatβs through gimmicks or whether through itβs saying itβs comedy but then changing their minds, or whether itβs through, I donβt know, glittery earrings and beautiful charity shop clothes. Win them around in whatever way possible, but then get them to listen.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah.
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I think thatβs what I love about standup is for me standup is a very mainstream artform but you can put radical ideas into it, and you can talk about the social model of disability on a Friday night in a club when everyoneβs on a night out. So, thatβs why standup particularly appeals to me.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah.
JULIETTE-ΜύΜύΜύΜύΜύ Itβs anger. Itβs what Sam said earlier, itβs the anger, the force of anger. If you guys are angry then thatβs brilliant because thatβs going to be a motivational force that we can all use to our advantage.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And everyone doing their thing. And you guys are certainly doing your thing. Listen, weβre going to move on to Sam now. Sam Brewer, hello darling.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Hello.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ One of the writers and actors in, okayβ¦
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Canβt say the title.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, heβs in a playβ¦
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Because we canβt say swear words.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ β¦that we cannot tell you what itβs called because itβs got rudey-dudey words in it, okay.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Very rudey.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Now, weβve been through Edpol several timesβ¦
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thatβs our legal lot.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ β¦can we shorten it, can weβ¦? No, we canβt. So, we are going to call it itβs an MF Pleasure. Okay.
JULIETTE-ΜύΜύΜύΜύΜύ Oh, I get it.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Very clever.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ If you want to find out more just google Sam and youβll know.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Google FlawBored, not me. Donβt google me.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I googled you Sam.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Have you got a murky past?
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ No, no murky past here. What are you talking about? [laughter]
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Now, youβre playing at Underbelly Friesian, thatβs right, isnβt it?
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, Underbelly Friesian, 2:20pm till the 27th August. Thatβs theβ¦
JULIETTE-ΜύΜύΜύΜύΜύ You say that as if itβs like till the end of time [laughter].
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ It feels like it. I think everyone was talking about their Edinburgh Fringe experiences before and Iβve got to be honest, itβs probably the most stable living situation Iβve had in a long time [laughter]. Before that my flat back in London there was a random man who was sleeping on my bed who I didnβt know who he was for about a month.
JULIETTE-ΜύΜύΜύΜύΜύ Really?
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Now Iβve got my own room, itβs pretty great [laughter].
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ You honestly werenβt worried when you came up with the name for this play about media, were you really?
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ No.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ No. I get quite excited now because obviously I know Em, and I love her very much, and weβve been doing this thing for a year now, and Iβm like down with blind people, right [laughter]. I get well excited when thereβs some technology, or Iβm getting excited about audio description.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I have my Perkins Brailler with me today.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ She had her brailler, yeah.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Have you heard of one of those?
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Itβs an amazing piece of machinery.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Itβs a typeβ¦itβs likeβ¦
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Straight out of the β50s.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ β¦an old typewriter, but braille, so six keys. Itβs really noisy and itβs really heavy and itβs metal, and everyone in the whole office was salivating over it, ah, this is great.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ We were, we were. But I was thinking now that Iβm down with blind people and stuff and I know aboutβ¦
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Sorry, it just connected with me, when you said down with blind people you meant like as in down with the kids, right?
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Down with the kids, yeah.
JULIETTE-ΜύΜύΜύΜύΜύ What did you think?
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I thought it was like a protest.
JULIETTE-ΜύΜύΜύΜύΜύ Yeah.
JOE-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Like theyβre taking a real turn [laughter], down with blind people!
JULIETTE-ΜύΜύΜύΜύΜύ I really thought that too.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Did anyone else feel the same? Is everyone going to start going, down with blind people, down with blind people! [laughter]
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Do it! I was at Bristo Square yesterday and there was a table on one half it was deaf people and one half was blind people.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Wow.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Two natural mortal enemies. It was like the Treaty of Versailles, it was so awful.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Tell us a little bit about FlawBored and also tell us about your show.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ So, FlawBored is a disability-led theatre company, weβre a new writing/devising company, which is just a fancy way of saying making work. It was started by Chloe Palmer, Aarian Mehrabani and myself. Aarian and I are both severely sight impaired or blind, and Chloeβs not disabled; but a big thing for us was sort of trying to create this space of sort of disability-led but sort of creating a shared space between disabled and non-disabled people. And this show itβs an MF Pleasure.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Well done.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ That was written by the three of us and our director, Josh Roach. But the main crux of the show is basically us selling identity and the way that identity has been monetised nowadays. And I donβt think with disabled identity that you can necessarily monetise that. So, the whole purpose of the show is a PR company where somebodyβs done an ableism and to try and solve the issue, they basically try to create disability as the next cultural cachΓ© that people are scrambling for. So, it sort of climaxes to the point where people are trying to opt in to being blind and stuff like that.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Love this.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Which leads to horrific results. But the funniest part about horrific results is any time blind people are watching it theyβre laughing. Everyone else is really uncomfortable [laughter].
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I was really uncomfortable with that.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ We need to explain.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ You see, not all blind people are the same.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Not all blind people are the same; I have that tattooed on my back.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Ems, we do need, because you know I was a bit unsure of the word ableism for a while and you had to teach me.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Oh god.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ What is doing an ableism?
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Sam?
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, Sam, over to you.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Explain ableism.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Ohβ¦
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Iβm sure we can do it together.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Itβsβ¦
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ One word at a time:
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Itβs doingβ¦
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ β¦somethingβ¦
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ β¦thatβ¦
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ β¦isβ¦
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ β¦upsettingβ¦
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ β¦orβ¦
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ β¦discriminatoryβ¦
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ β¦toβ¦
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ β¦disabledβ¦
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ β¦people.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Oh, that was really good [applause].
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Teamwork. Thank you. So, the branding company did an ableism and they decided, the company decided that blindness was the new thing, and you had an influencer getting people to show people how to have a shower blind and all that.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, and also basically sellingβ¦thereβs a line in it like: Youβre a straight white, non-disabled man with a steady job and, I donβt know, a 40k salary. Yeah? Well, youβve got nothing to complain about. So, with us they can feel, you know, what, feel marginalised. So, itβs the selling the idea of marginalisation to non-disabled people so they can complain about something in that sense.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And you had a moment yourself when you were in a call centre when you were really young.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ What happened there?
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Sort of like the genesis for this idea sort of like comes from all of our experiences as a team when writing this. But my personal experience with the corporate world and being disabled, I remember working at a call centre years and years ago back in Australia, and I was doing the briefing for something and I was looking really closely at the briefing paper β because if I need to read something Iβll hold it super close to my face so it looks like Iβm smelling it. And the person who was the boss of the call centre had a big fur coat, it looked very tacky, but she basically went like, βWhat are you doing? We donβt hire blind people here!β and everyone who knew me they just clenched up because they heard what she just said. And then I just sat there silently, because I would have been like 18 years old and I didnβt have the kind of vocabulary I have now to stand up for myself. But within a week at that same call centre they did a diversity and inclusion workshop with disabled people, and it was just a get stuffed moment from me. And that sort of stuff and that sort of righteous anger has motivated us as a group to make this show.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah. Do you mind me talking about your diagnosis, Sam?
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, okay. Basically I have a thing called Knobloch syndrome. Itβs a terrible, terrible name [laughter]. And when they gave it to me β well, the doctors didnβt give it to me [laughter]β¦
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ They gifted you Knobloch syndrome.
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah. When I moved to the UK I just wanted to register as severely sight impaired so I could get a free Oyster Card so I could get free transport. And they were like, βYou know youβre going to deaf as well?β I was like βWhat! No oneβs told me that!β I was here when I was 26. I spent six months basically waiting for a second appointment, went back in and they were like, βOh no, youβre not going to go deaf, youβve just got this other thing called Knobloch syndromeβ and I was like, βOkay, what does that mean?β because immediately you think where my mindβs going to go. And basically the doctor who was like this professor, he was a very celebrated professor, all the walls at this Moorfields Eye Hospital are like the partition walls you have in like insurance companies so people can hold onto them and peek over, and he peeks over and he shouts, βSharon! Sharon! Come here!β and another doctor comes running into the partition office. βFeel the back of his skull!β and they start rubbing the back of my head. And, βHeβs got Knobloch syndrome!β and Iβm like βWhat does this mean? No oneβs told me anything!β And the reason they werenβt able to diagnose it is usually with Knobloch syndrome the back of your skull is slightly concaved in. so, then Sharon peers over the partition, calls for Steve, Steve comes in, he feels the back of my skull, then Steve calls for Chris, Chris comes in and then Chris takes a photo of me. And then I got my Oyster Card for free transport [laughter].
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yay, good one.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I love it. I love this whole idea of disability humour, because for me growing up Iβve always been disabled so for me it was the early stages when I was a bit of a dufuss, letβs say that, Iβd be cracking all the gags. Actually even up until recently Iβd be like, βOh yeah, Iβm like Madge from Benidormβ. Have you ever seen Benidorm? Madge, the cigarette smoking on the scooter.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ They donβt know what to do with her, no she isnβt, but she says she is. I donβt know.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I wonder with humour is it a way to likeβ¦for me it was a way to sort of protect myself in the early stages. I was like laughing at myself in a way. But your kind of disability humour seems like you want to educate people as well, bring out the absurdity of many things but also through that educate?
SAM-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I completely agree. I think for us thereβs one thing where itβs this kind of punk attitude where itβs an external driving force. So, the show it teaches you something but itβs not teaching you something in like, well did you know that the social model of disability is this. Itβs very much using, like anger is a gift in some capacities, and that can really motivate and help you to create something quite powerful to showcase to other people. The work is so powerful! I donβt mean it like that, but I think that trying to externalise that frustration or externalise the frustrations youβve had about yourself onto society and sharing that with an audience. Because the reason we go to shows is because A, I want to laugh and B, also for theatre especially itβs empathy. And I think thatβs the main reason people watch theatre.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ But you donβt sound like, all of you donβt sound like youβre going for the easy win, do you know what I mean, when it comes to the laugh? Youβre so much more than that. Does that make sense?
JULIETTE-ΜύΜύΜύΜύΜύ I love what Sam said about the, I used to use #mentalhealth in lots of my publicity and stuff, Insta and other social media, and suddenly it became this thing to slap on a t-shirt and then sell to people with mental wellness. And it becomes this commercialised, capitalised thing which is like whatβs happening here, thereβs actual people who are still segregated and ostracised and suddenly it becomes this kind of thing.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah.
JULIETTE-ΜύΜύΜύΜύΜύ I donβt know. I donβt have any solutions to that; I just have a comedy show [laughter]. But I think that's part of the anger, like youβre saying, thatβs where that anger resonates from. And when I first started out in comedy somebody told me, βComedy is all about what makes you angryβ and I was like, βOh no, I never get angry. Holding onto anger is like holding onto hot coals expecting somebody else to get hurtβ. Do you know what makes me angry? Pass to me, sheβs an idiot [laughter].
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Oh you guys have been brilliant, thank you.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Absolutely.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Juliette Burton, Joe Wells, Sam Brewer [applause].
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Fantastic. This is the anger episode I feel.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thank you so much to our guests again.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, itβs been brilliant.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thank you to our audience here and at home. People can get in touch with us, canβt they?
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Yeah, they can: accessall@bbc.co.uk. Donβt ask me what the WhatsApp number is because I cannot remember.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ 0330 123 9480.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ We like text messages, or voice notes even better. Subscribe, donβt forget to subscribe.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ That X thingy.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ @³ΙΘΛΏμΚΦAccessAll on Twitter.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Access All on Twitter.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Or X or whatever it is. Youβve been a wonderful audience. Thank you so much.
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Thank you.
NIKKI-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And this has been Access All [applause].
EMMA-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Blindy wave, blindy wave.
[Trailer for Newscast]
PRESENTER-Μύ You know when youβre worried about something, but then you talk to your friend who knows more about the subject than you do, and straightaway you start to feel better? Thatβs what we try and do every day on Newscast.
CLIP-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Now, theyβre saying that that would be simple to do, it would give everyone certainty.
PRESENTER-Μύ We talk to people who are in the news:
CLIP-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ You were chasing me round with a plate of cheese.
PRESENTER-Μύ We talk to people who know whatβs going on in the news:
CLIP-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ At least I didnβt get up and slap anybody.
PRESENTER-Μύ We talk to people who understand what the news means:
CLIP-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ I think that heβs decided heβs going to listen, and then he might just intervene.
PRESENTER-Μύ And we talk to the best ³ΙΘΛΏμΚΦ journalists, asking the most important questions:
CHRIS-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Whatβs wrong with chinos? You donβt want them, people to start wearing chinos?
CLIP-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Donβt start me, Chris.
PRESENTER-Μύ Thatβs Newscast from ³ΙΘΛΏμΚΦ News, the podcast that knows a lot of people who know a lot about the news.
CLIP-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ And I was like, go on Kate, put some more welly into it!
CLIP-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Listen to Newscast every day on ³ΙΘΛΏμΚΦ Sounds.
CLIP-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Iβm glad I asked that.
CLIP-ΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύΜύ Iβm very glad that you asked that!
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Access All: Disability News and Mental Health
Weekly podcast about mental health, wellbeing and disabled people.